Anyone who knows me, knows that I am always talking about where I want to travel next. I love traveling. I enjoy experiencing different cultures, environments, and trying something new. My family taught me to not let cystic fibrosis get in the way of my desire of wanting to see new places. Look, I understand that traveling with cystic fibrosis can be very overwhelming. Packing medications, planning for … Continue reading Cystic Fibrosis and Travelling (GP)
I was diagnosed with Cystic Fibrosis when I was just 3 weeks old. I was diagnosed with Pseudomonas when I was just two, this was the start of endless treatments and IV antibiotics. It was also the time that I refused to eat and needed to have a tube put down my nose to feed me. This was my life for many many years (the … Continue reading Cystic Fibrosis, Transplant and Me (GP)
This post was originally written in 2016 by Danielle Jones who passed away November 2017. Life with Cystic Fibrosis. It has its good and bad times. I was diagnosed with CF at 9 weeks old. I was pretty much in hospital for that whole 9 weeks due to being so poorly. As the years went on I was still very healthy, lung function would … Continue reading Life With Cystic Fibrosis – In Memory of Danielle Jones
My name is Siobhan Coles and I would first of all like to start off by thanking Shannon for the opportunity to be featured on her Blog for Cystic Fibrosis Awareness Month! I am here today to talk about my own experiences of life with Cystic Fibrosis and its effects on Mental Health, all too often Mental Health is pushed to one side and not … Continue reading Cystic Fibrosis and Mental Health (GP)
Whether it be a friendship, romantic or even family, relationships are tough at times for everyone. Although you may not think it, CF can have a dramatic effect on not only the person with CF but the people in their life, their social life and the things people without CF take for granted. Personally I’ve always struggled with friendships in particular. Some friends I’ve had … Continue reading CF and Relationships (GP)
This post was originally written in May 2016 by Jessica Paddock. Jess, unfortunately, passed away in January this year. Jess had CF and this post is about organ donation. To join the organ donor register go to https://www.organdonation.nhs.uk//register-to-donate/register-your-details/ What a beautiful thing. I slowly opened my eyes to find myself in ICU, but unlike before I was no longer scared. Even though I had a breathing tube down … Continue reading A Beautiful Thing – In Memory of Jessica Paddock
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