Cystic Fibrosis Q&A (Part 2)
“3 words to describe living with CF?” 1. hard 2. tiring 3. limiting “How many different medications do you have and when do you take them?” … Continue reading Cystic Fibrosis Q&A (Part 2)
Tag: cystic fibrosis month
Cystic Fibrosis and Travelling (GP)
Anyone who knows me, knows that I am always talking about where I want to travel next. I love traveling. I enjoy experiencing different cultures, environments, and trying something new. My family taught me to not let cystic fibrosis get in the way of my desire of wanting to see new places. Look, I understand that traveling with cystic fibrosis can be very overwhelming. Packing medications, planning for … Continue reading Cystic Fibrosis and Travelling (GP)
Cystic Fibrosis, Transplant and Me (GP)
I was diagnosed with Cystic Fibrosis when I was just 3 weeks old. I was diagnosed with Pseudomonas when I was just two, this was the start of endless treatments and IV antibiotics. It was also the time that I refused to eat and needed to have a tube put down my nose to feed me. This was my life for many many years (the … Continue reading Cystic Fibrosis, Transplant and Me (GP)
My Wish Experience with Zoella (Rays of Sunshine)
This post was originally posted in 2015, I’ve added a little bit to the beginning to show why wishes are so important to kids with life threatening illnesses but the story remains the same. On August the 19th in 2015 I had one of the best days of my life. I met the world famous beauty blogger Zoe Sugg, AKA Zoella. I had this … Continue reading My Wish Experience with Zoella (Rays of Sunshine)
Life With Cystic Fibrosis – In Memory of Danielle Jones
This post was originally written in 2016 by Danielle Jones who passed away November 2017. Life with Cystic Fibrosis. It has its good and bad times. I was diagnosed with CF at 9 weeks old. I was pretty much in hospital for that whole 9 weeks due to being so poorly. As the years went on I was still very healthy, lung function would … Continue reading Life With Cystic Fibrosis – In Memory of Danielle Jones
What Not To Say To Someone With Cystic Fibrosis
“But you don’t look sick!” Thanks for the compliment? “Maybe you did something that triggered the illness.” Sure. Thanks. I feel great now. “I know exactly how you feel.” I’m pretty sure you don’t since you don’t have a chronic illness. “My friends, mothers, cousins, daughter died of CF.” Wow. Thanks for telling me. I really appreciate that. “It could be worse! You could have … Continue reading What Not To Say To Someone With Cystic Fibrosis
What I Wish People Knew About CF
It’s not contagious Literally nothing about CF is contagious! A lot of people don’t know that the only way to have CF is by having two faulty CF genes. Everyone’s CF is different My CF problems are a lot different to my friends with the … Continue reading What I Wish People Knew About CF
Cystic Fibrosis and Mental Health (GP)
My name is Siobhan Coles and I would first of all like to start off by thanking Shannon for the opportunity to be featured on her Blog for Cystic Fibrosis Awareness Month! I am here today to talk about my own experiences of life with Cystic Fibrosis and its effects on Mental Health, all too often Mental Health is pushed to one side and not … Continue reading Cystic Fibrosis and Mental Health (GP)
CF and Relationships (GP)
Whether it be a friendship, romantic or even family, relationships are tough at times for everyone. Although you may not think it, CF can have a dramatic effect on not only the person with CF but the people in their life, their social life and the things people without CF take for granted. Personally I’ve always struggled with friendships in particular. Some friends I’ve had … Continue reading CF and Relationships (GP)
Cystic Fibrosis Q&A (Part 1)
“What do you struggle with most?” Knowing that my life will be a lot shorter than my friends, they all know this though I’m not sure it’s truly sunk in for them that I will likely die young as I’ve been fairly healthy since I’ve known most of them. It kind of scares me to have these relationships because I don’t want too many people … Continue reading Cystic Fibrosis Q&A (Part 1)
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