It’s not contagious Literally nothing about CF is contagious! A lot of people don’t know that the only way to have CF is by having two faulty CF genes. Everyone’s CF is different My CF problems are a lot different to my friends with the … Continue reading What I Wish People Knew About CF
My name is Siobhan Coles and I would first of all like to start off by thanking Shannon for the opportunity to be featured on her Blog for Cystic Fibrosis Awareness Month! I am here today to talk about my own experiences of life with Cystic Fibrosis and its effects on Mental Health, all too often Mental Health is pushed to one side and not … Continue reading Cystic Fibrosis and Mental Health (GP)
Whether it be a friendship, romantic or even family, relationships are tough at times for everyone. Although you may not think it, CF can have a dramatic effect on not only the person with CF but the people in their life, their social life and the things people without CF take for granted. Personally I’ve always struggled with friendships in particular. Some friends I’ve had … Continue reading CF and Relationships (GP)
“What do you struggle with most?” Knowing that my life will be a lot shorter than my friends, they all know this though I’m not sure it’s truly sunk in for them that I will likely die young as I’ve been fairly healthy since I’ve known most of them. It kind of scares me to have these relationships because I don’t want too many people … Continue reading Cystic Fibrosis Q&A (Part 1)
This post was originally posted on my Instagram on March 17th, 2016. @shannonjamesphotography / Instagram, 2016 If you were sat in one of these seats and a young person, maybe a teenager coming home from school, asks to sit down, would you get up if it looked as if there was nothing wrong with them? You said “No.” Am I wrong? Most people will say … Continue reading Invisible Illness
This post was originally written in May 2016 by Jessica Paddock. Jess, unfortunately, passed away in January this year. Jess had CF and this post is about organ donation. To join the organ donor register go to https://www.organdonation.nhs.uk//register-to-donate/register-your-details/ What a beautiful thing. I slowly opened my eyes to find myself in ICU, but unlike before I was no longer scared. Even though I had a breathing tube down … Continue reading A Beautiful Thing – In Memory of Jessica Paddock
Cystic Fibrosis is a genetic condition that affects over 10,000 people in Britain. People with CF have two faulty CF genes, one from each parent. If two people with one faulty CF gene each have a child then there is a 1 in 4 chance that the child will have CF, a 2 in 4 chance of a the child being a carrier (like their … Continue reading What Is Cystic Fibrosis?
Captain Marvel (2019) Directors: Anna Boden & Ryan Fleck UK rating: 12A Length: 123 minutes Cast: Brie Larson, Samuel L. Jackson, Ben Mendelsohn I was lucky enough to see the first showing of Captain Marvel in my local cinema at midnight. I have to say thank you to Amelia for taking me, her boyfriend and her sister with her. The film is set in 1995 … Continue reading Film Review: Captain Marvel
Five Feet Apart (2019) Director: Justin Baldoni UK Rating: 12A Length: 116 minutes Cast: Haley Lu Richardson, Cole Sprouse, Moises Arias Five Feet Apart is a film that I’ve waited all my life for. The plot revolves around two teenagers with Cystic Fibrosis, Stella Grant and Will Newman (played by Haley Lu Richardson and Cole Sprouse), who start off as people who can’t really stand … Continue reading Film Review: Five Feet Apart
Spider-Man: Into The Spider-Verse (2018) Directors: Bob Persichetti, Peter Ramsey & Rodney Rothman UK Rating: PG Length: 117 minutes Cast: Shameik Moore, Jake Johnson, Hailee Steinfeld Today I saw Spider-Man and I’ll be honest, I wasn’t expecting to come out of the cinema as happy as I did. To put it simply, I loved the film! I have been privileged enough to see many great … Continue reading Film Review: Spider-Man: Into The Spider-Verse
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