Well, last night I watched Cats (1998) for the first time. It was interesting. Cats is something that I’ve always thought was pure crazy. I can’t say I’m the biggest fan of any of Andrew Lloyd Webber’s work but this musical always stood out to me as just being weird and bad. It may not be as bad as I always thought but it’s definitely … Continue reading Film Review: Cats (1998)
Spider-Man: Far From Home (2019) Director: Jon Watts UK rating: 12A Length: 129 minutes Cast: Tom Holland, Zendaya, Jake Gyllenhaal If you know anything about me, you’ll know that I am a massive Marvel fan. I would happily sit for hours watching the films or tv shows, they’re that good! With that in mind, I may be biased. However, in my opinion, Spider-Man: Far From … Continue reading Film Review: Spider-Man Far From Home
“3 words to describe living with CF?” 1. hard 2. tiring 3. limiting “How many different medications do you have and when do you take them?” … Continue reading Cystic Fibrosis Q&A (Part 2)
Anyone who knows me, knows that I am always talking about where I want to travel next. I love traveling. I enjoy experiencing different cultures, environments, and trying something new. My family taught me to not let cystic fibrosis get in the way of my desire of wanting to see new places. Look, I understand that traveling with cystic fibrosis can be very overwhelming. Packing medications, planning for … Continue reading Cystic Fibrosis and Travelling (GP)
I was diagnosed with Cystic Fibrosis when I was just 3 weeks old. I was diagnosed with Pseudomonas when I was just two, this was the start of endless treatments and IV antibiotics. It was also the time that I refused to eat and needed to have a tube put down my nose to feed me. This was my life for many many years (the … Continue reading Cystic Fibrosis, Transplant and Me (GP)
This post was originally posted in 2015, I’ve added a little bit to the beginning to show why wishes are so important to kids with life threatening illnesses but the story remains the same. On August the 19th in 2015 I had one of the best days of my life. I met the world famous beauty blogger Zoe Sugg, AKA Zoella. I had this … Continue reading My Wish Experience with Zoella (Rays of Sunshine)
This post was originally written in 2016 by Danielle Jones who passed away November 2017. Life with Cystic Fibrosis. It has its good and bad times. I was diagnosed with CF at 9 weeks old. I was pretty much in hospital for that whole 9 weeks due to being so poorly. As the years went on I was still very healthy, lung function would … Continue reading Life With Cystic Fibrosis – In Memory of Danielle Jones
“But you don’t look sick!” Thanks for the compliment? “Maybe you did something that triggered the illness.” Sure. Thanks. I feel great now. “I know exactly how you feel.” I’m pretty sure you don’t since you don’t have a chronic illness. “My friends, mothers, cousins, daughter died of CF.” Wow. Thanks for telling me. I really appreciate that. “It could be worse! You could have … Continue reading What Not To Say To Someone With Cystic Fibrosis
It’s not contagious Literally nothing about CF is contagious! A lot of people don’t know that the only way to have CF is by having two faulty CF genes. Everyone’s CF is different My CF problems are a lot different to my friends with the … Continue reading What I Wish People Knew About CF
My name is Siobhan Coles and I would first of all like to start off by thanking Shannon for the opportunity to be featured on her Blog for Cystic Fibrosis Awareness Month! I am here today to talk about my own experiences of life with Cystic Fibrosis and its effects on Mental Health, all too often Mental Health is pushed to one side and not … Continue reading Cystic Fibrosis and Mental Health (GP)
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